• Blog,  Cystic Fibrosis Life,  Health

    Tips for Airway Clearance and Strong Lungs

    COVID-19 is here and in some ways, it seems to me like the rest of the world just woke up one day to the life of a Cystic Fibrosis Patient. Suddenly all human beings have to learn how to live their lives with a six foot rule, being super germ-aware, and managing the mental and emotional toll of what is now known as social distancing. These realities are not new to those of us in the CF Community. We have been living them for decades now and when this is over, we will still have to live them. Rather than complain about this, I want to share some insight on…

  • Blog,  Cystic Fibrosis Life

    Embracing the Box of Cystic Fibrosis

    “You gotta stop putting me in this box of cystic fibrosis!” I said forcefully while choking back tears. “Mandy, you’re already IN that box! I’m not the one putting you there. But you’re there and you’ve got to be realistic about it,” my friend said back with equal levels of force. There was, however, an underlying tone of care and maybe a smidge of compassion in his voice that made me lean in and face what he was saying. I’ve known this friend for two decades and this topic has never been breached before, only tiptoed around. What he said struck a nerve; a deep one. Quick warning: this is…

  • Blog,  Cystic Fibrosis Life,  Work

    How I Am Able to Speak Ten Hours in One Day with Cystic Fibrosis

    Once upon a time, about a decade ago, I had a dream to be a motivational speaker and coach. Back then speaking in public was actually a HUGE fear for me, but I pushed past the fear and started practicing and eventually the fear left and I now LOVE speaking in public! I’m a driven person so I’ve got BIG goals of things I want to accomplish in the next decade; and I also have cystic fibrosis. This gets a bit tricky because my energy levels can sometimes get depleted just with basic every day life tasks, so it really is a big deal that I am able to speak…

  • Blog,  Hope,  Self

    Monday Motivation: Your Atmosphere Matters

    How’s the atmosphere in your home lately? I only ask because, well, I’ll explain it with a story… About a month ago we decided we wanted to get a new couch. The only problem was that the couches we liked will only fit in our living room one way. So I suggested that we switch our current furniture around so that we could try it out. We’ve been living with a pretty open floor plan – in fact, we’ve always loved open feelings in our homes. Anyway, we moved the furniture around and it felt somewhat cozy. It was something new and while it cut up the room and made…