Living Beyond Cystic Fibrosis

Living Beyond Cystic Fibrosis…

Hi!

Maybe we’ve just met, or maybe we’ve been meeting here for quite some time. Either way, I want to share this story with you. My name is Mandy B. Anderson. For as long as I can remember, I have wanted to be a speaker/singer and share my story of overcoming cystic fibrosis as well as my songs. I wanted to inspire others to rise up and overcome this disease by living their lives in the FACE of it.

Through the years my message and my passion has evolved, but the desire to impact people in a big way is still as strong as it was that long ago day when I was a kid standing on an end table pretending to address an invisible crowd with a hairbrush microphone. Little five year old me had no idea what it would take to overcome such a big disease. Thankfully, people and tools were put on my path to help not just survive cystic fibrosis, but to thrive in the midst of it.

Every parent and child who has faced CF knows that it’s not easy. Some of us stay healthy while others have to work three times as hard. It’s not fair, but it’s the nature of this beast. However, I believe that each of us is here for a purpose, and if CF is in your life, it’s a big part of your purpose. 

This website is for you. Years before it was a reality, I prayed that God would send you here. That this would be a place for you to find hope, encouragement, and healing. Friend, my story is for you…

Within the pages of this website you will find tips that will help build your health and your faith. You’ll be able to hear from me every week on the Living In True Wholeness BlogTalk Radio Show. You’ll also be able to see me every day on Social Media. Scroll down below and you’ll find more resources to help you on your own journey from sickness to health. But first, enjoy this special gift…

Lessons Learned on My Journey of Cystic Fibrosis

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Other CF Related Information:

Cystic Fibrosis Nutrition (the program I use to stay healthy and equip others to do the same!)

My 22 Days in the Hospital

Cystic Fibrosis Book – In Sickness and In Health

Thriving With Cystic Fibrosis

Team Hope

(The following excerpt was taken from the Cystic Fibrosis Foundation website at www.cff.org)

What Is Cystic Fibrosis?

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:

• clogs the lungs and leads to life-threatening lung infections; and
• obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

Symptoms of Cystic Fibrosis

People with CF can have a variety of symptoms, including:

• very salty-tasting skin;
• persistent coughing, at times with phlegm;
• frequent lung infections;
• wheezing or shortness of breath;
• poor growth/weight gain in spite of a good appetite; and
• frequent greasy, bulky stools or difficulty in bowel movements.

Statistics

• About 1,000 new cases of cystic fibrosis are diagnosed each year.
• More than 70% of patients are diagnosed by age two.
• More than 45% of the CF patient population is age 18 or older.
• The predicted median age of survival for a person with CF is in the late 30s.

The Cystic Fibrosis Foundation

Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters — patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.