Day 28: Doris Tulcin - Dangerous Hope Agent
30 Days of Dangerous Hope

Day 28: Doris Tulcin, Cystic Fibrosis, and Me

The year was 1955. Doris Tulcin was the mother of a two-year-old daughter named Annie. Annie had Cystic Fibrosis and was given one year to live.

Determined to save the life of her child, Doris did what moms do. She partnered with 3 other CF Moms to find a solution. Together, they formed a support group and called it the Cystic Fibrosis Foundation.

Now, they didn’t have the answers to their children’s health problems. But what they did have was a DANGEROUS HOPE that they could make a difference in a big way.

Here’s what happened over the next 65 years…

  • 1961 – developed care centers focused on the disease
  • 1982 – gathered top-notch scientists to establish a research development program to improve their understanding of CF which eventually led to the discovery of the CF gene (1989).
  • In the 1990’s research allowed them to develop new medications that extended their quality and length of life.
  • 2012 – developed the first drug to treat the underlying cause of CF. (Up to 60% of the CF population were helped from these drugs)
  • October 2019 – Trikafta was introduced into the world. It is a game changer in the CF community – with the ability of helping up to 90% of the CF population.

People are going OFF of lung transplant lists because of this medication. All because of a Dangerous Hope that Doris and a handful of people stayed committed to for over six decades!

Doris Tulcin’s Dangerous Hope affected the CF Community around the globe.

Decades later, her Dangerous Hope impacted my life. I’ve made big mistakes in my life; yet, because of the medical advancements in the Cystic Fibrosis Community, I’ve been given a second chance at a healthy life. I use my voice and my story to speak up about what I experienced, and how important it is to stay on medication for this disease. I’ve chosen to make it matter.

That is the strength of Dangerous Hope! It is the only thing stronger than fear!

Getting really good about going through the Hope Cycle and still keeping Dangerous Hope burning bright is important.

Don’t think for a moment that Doris’s story was without challenges or heartbreak. While I’ve never met her, it’s not hard to consider that she went through the Cycle of Hope many times over the last 65 years. Think about it…

Maybe she entertained false hope by wishing CF would just go away or that there would be a cure developed quickly.

She most likely felt the fear and frustration of hope deferred when kids were dying, and the research team hadn’t even been developed yet.

She probably had moments where she worked through the cycle of hope again and again; because she’s human.

But at the end of the day she turned her sorrows into a dangerous hope of action that impacted the entire world. She kept fanning the flame of Dangerous Hope again and again.

And Annie? Well, Annie celebrated her 67th birthday this year. That is the power of Dangerous Hope.

The message of Dangerous Hope needs to reach the masses.

People need to hear stories like Doris’s. They need to hear my story of rising up from the ashes of my circumstances. We all need to be reminded of stories like these, or like Zach Sobiech, or my friend, Kim Nagle. People need these stories because hope can be fickle until you learn how to keep it growing.

I’m in the last twenty-four hours of my Dangerous Hope Book pre-order campaign. It’s been a wild ride, and honestly, it’s just beginning. Tomorrow I’ll share some points on how you can become a Dangerous Hope Agent in your own corner of the world. Until then, Visit https://publishizer.com/dangerous-hope to pre-order your copies of my book today. When you pre-order 5 or more copies, you’ll get access to the Build Hope Library – an online training area with videos and downloads that you can start implementing this week!

Thank you so much for your support…I can’t wait to get it into your hands!

Much love,

~Mandy

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